Uriel E. Owens
Sickle Cell Disease Association of the Midwest
Break the Sickle Cycle
Provide information and awareness about Sickle Cell Disease, to advocate for the needs of persons with Sickle Cell, and to support research to find a cure.
About the Disease
Sickle Cell Disease is an inherited blood disorder that affects the red blood cells.
Normal red blood cells are round and shaped like a donut. They carry oxygen and nutrients throughout the body.
Sickle cells, however, are abnormally shaped and cannot carry oxygen well, and they have a shorter life span than normal red blood cells.
As a result, anemia is constantly present. Sickle Cells are rigid and their abnormal, “sickle” shape causes them to clog in the blood vessels preventing the delivery of oxygen to tissues and organs.
The anemia and obstruction of blood flow are the cause of the many health problems associated with Sickle Cell Disease.
The most common and impactful feature of the disease is the occurrence of pain attacks caused by the sickle cells clogging the blood vessels.
These attacks may occur at any time and in any part of the body and are of varying severity and duration.
Sickle Cell Disease also causes fatigue, higher risk of infections, stroke, necrosis, loss of appetite, and other serious manifestations throughout the body and organ systems.
Bone marrow transplant is the only known cure for sickle cell.
However, not all sickle cell patients may qualify for this treatment.
The drug Hydroxyurea is now being widely used as a treatment for sickle cell and has had a beneficial effect for many sickle cell patients.
Conventional treatment consists of managing the health problems as they occur.
Persons who carry the gene for Sickle Cell Disease have what is known as Sickle Cell Trait.
Persons with Sickle Cell Trait are healthy and rarely have physical manifestations of the disease except under very extreme conditions.
Persons wanting to have children should know their sickle cell status.
If two people who have sickle cell trait conceive a child, they have a one in four chance of having a child with Sickle Cell Disease.
Uriel Owens suffered greatly from Sickle Cell Anemia but despite the debilitating effects of Sickle Cell Anemia, he made outstanding contributions to his community.
As a well-known civic leader in Kansas City, Kansas, he helped to establish the Juniper Gardens Children’s Project
For several years he was Director of the Economic Opportunity Foundation, an anti-poverty organization in Kansas City, Kansas.
He was an active member of the Democratic Party and was a delegate to the Democratic Convention in Miami, Florida in 1972.
Owens had often expressed the need for an organization that could assist sickle cell patients and their families in various ways.
After his death on October 16, 1980, family members and close friends of Uriel decided to establish a sickle cell organization in his honor.
The Sickle Cell Disease Association of the Midwest was established on January 19, 1981.
The association continues to provide assistance to persons with Sickle Cell Disease, and to educate the community about the disease.